CORE Network Manager
Position: CORE Network Manager
Reports to: Learning & Education Director
Location: UK or US, Remote Based
Salary: $53,000 / £41,000 per annum (location dependent)
Working Hours: 9AM-5PM GMT/ET (location dependent)
Contract Type: Fixed-term contract (12 months), with the intention to renew on an annual rolling basis, subject to program funding.
Organization Overview
The Ehlers-Danlos Society’s mission is dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.
Our vision is to create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs.
Program Overview
The CORE Network of Excellence Program is a global, multi-site initiative The program also embeds participation in the Global DICE EDS & HSD Registry and Global Biobank within routine clinical care and supports real-world implementation of diagnostic and care standards across diverse health system contexts. CORE Network sites operate as active learning and implementation environments, contributing to workforce development, research participation, and continuous improvement in care delivery.
Overview of Responsibilities
The CORE Network Manager is accountable for the strategic delivery, coordination, and continuous improvement of The Ehlers-Danlos Society’s CORE Network of Excellence Program.
The role has primary responsibility for implementing and managing a global, internship-anchored program model designed to build clinical workforce capacity in EDS and HSD, while facilitating research participation and supporting real-world implementation of diagnostic and care standards across participating CORE sites.
This is a delivery-focused management role requiring strong program ownership, systems thinking, and the ability to translate organizational strategy into structured, measurable program outcomes across diverse health system contexts. Success in the role is defined by the effective operation of the CORE Network, the quality and consistency of internship delivery, and demonstrable progress across workforce, research, and implementation objectives.
Key Responsibilities/Essential Functions
This role has four (4) core areas of ownership, the responsibilities involved include, but are not limited to:
Program Delivery & Oversight
Own delivery of the CORE Program, ensuring program components operate as a single, coherent program model.
Translate program strategy into clear delivery plans, including annual objectives, program planning, objective delivery milestones, and quality expectations.
Establish and maintain a consistent internship-hosting model across sites, including requirements, learning expectations, supervision standards, and practical delivery guidance.
Ensure research participation (DICE Global Registry and Global Biobank) is embedded into routine clinical pathways at participating sites in ways that are feasible, ethical, and consistently applied.
Support consistent real-world implementation of the Road to 2026 diagnostic and care criteria across the network, identifying where implementation varies and what support is needed to improve consistency.
Coordinate internal cross-functional delivery (e.g., Learning and Education, Research, Operations, Communications as needed) so that sites receive timely inputs, decisions are unblocked, and deliverables stay on track.
Maintain program documentation and operating rhythms (e.g., site participation requirements, key processes, guidance materials, reporting calendar), ensuring clarity and consistency across a global network.
Actively manage delivery risks, dependencies, and constraints; escalate material issues appropriately and propose practical solutions that protect program outcomes.
Site & Stakeholder Management
Build and manage effective, trust-based relationships with participating CORE sites, ensuring clarity of expectations, accountability, and follow-through.
Lead site onboarding and ongoing engagement, ensuring sites understand and meet requirements related to internship hosting, research integration, and standards implementation.
Serve as the primary point of coordination for site communications, problem-solving, and issue resolution, maintaining momentum and consistency across regions and health system contexts.
Coordinate engagement with external clinical, academic, and institutional stakeholders as required to support internship delivery and program objectives.
Support governance-aligned collaboration with clinical leaders and subject matter experts to ensure program delivery remains credible, safe, and fit-for-purpose.
Insight, Measurement & Continuous Improvement
Lead the program’s monitoring, evaluation, and learning approach, ensuring consistent capture of workforce, research participation, implementation, and patient-experience-relevant signals across core sites.
Define (with leadership input as needed) and maintain a practical measurement framework that supports funder reporting, internal decision-making, and continuous improvement.
Ensure data and insight are collected and managed in ways that are usable and comparable across sites, and that feedback loops to sites are timely and improvement oriented.
Produce high-quality program reporting and narrative updates for funders and internal leadership, communicating progress, outcomes, learnings, and course-corrections clearly.
Use evidence and on-the-ground feedback to refine program guidance, internship models, site enablement, and operating processes over time.
Actively develop personal capability relevant to the role (e.g., workforce development, clinical education models, health systems change, implementation practice, research participation integration, impact measurement) and apply learning to strengthen both program performance and leadership effectiveness.
Line Management & Team Support
Provide line management to the CORE Coordinator, including setting clear priorities, supporting workload planning, and ensuring work is delivered to an appropriate standard and timeline.
Support the professional development of the Coordinator through regular check-ins, feedback, and development conversations, escalating support needs where appropriate.
Ensure day-to-day supervision, leave planning (PTO/TIL), and coverage are managed effectively so that program delivery is not disrupted.
Contribute to performance review and development planning processes in coordination with People Operations.
Work Environment
Under normal conditions, this role is a fully remote position, working from home. However, due to the international nature of the Society’s work, staff may be required to travel to company events, meetings, and conferences as well as some weekend work.
Requirements
Experience & Expertise
Demonstrated experience managing and delivering complex programs within healthcare, clinical education, workforce development, research, or health systems contexts.
Experience supporting or managing clinical education, internships, fellowships, or other structured workforce development initiatives.
Experience working with clinical services, multidisciplinary care environments, or health-related institutions.
Proven ability to translate strategic objectives into operational plans, deliverables, and measurable outcomes.
Experience coordinating and supporting external partners or sites, ideally across more than one organization, geography, or system.
Experience overseeing or contributing to programs that integrate service delivery with learning, research, or quality improvement.
Skills & Competencies
Strong program management skills, including planning, prioritization, risk management, and delivery across multiple workstreams.
Sound judgement and decision-making skills, with the ability to manage ambiguity and escalate appropriately.
Systems thinking, with the ability to understand and manage interdependencies between workforce development, research participation, and care delivery.
Strong stakeholder management skills, including the ability to build credibility and maintain productive working relationships with clinical and institutional partners.
Clear and confident written and verbal communication skills, including the ability to produce structured reports and updates for senior stakeholders and funders.
Ability to manage and support others’ work, providing clarity, feedback, and oversight while maintaining momentum and quality.
Work Environment & Travel Requirements
Must be eligible to work in the US or UK without sponsorship.
Reliable internet connection for video calls and cloud-based services, as this is a fully remote role.
Ability to attend one in-person retreat annually (UK).
Ability to travel to other in-person meetings and events as required.
Proficiency in MS Office Suite (Outlook, Word, Excel, PowerPoint), Teams, Zoom, Slack, and Monday.com (training provided).
Preferred Experience & Qualifications
Knowledge of EDS and HSD, or a strong commitment to developing subject-matter expertise in these conditions and their care pathways.
Experience supporting or managing clinical education, internships, fellowships, or other structured workforce development initiatives.
Familiarity with research participation frameworks, or implementation of clinical standards within care settings.
Experience working across international or cross-cultural contexts.
Experience contributing to monitoring, evaluation, learning, or impact reporting for funded programs.
Familiarity with HIPAA and GDPR is preferred (training provided).
Diversity Statement
The Ehlers-Danlos Society’s commitment to diversity and inclusion is driven by the four pillars of our mission: C.A.R.E. - providing care, access, research and education in all that we do. We are a global, multicultural organization, as such, we seek to increase opportunities for individuals from diversified backgrounds and are committed to building an inclusive culture that celebrates the diverse voices in our team and community. The Ehlers-Danlos Society actively recruits, employs, trains, compensates, and promotes opportunities regardless of race, nationality, ethnicity, gender, marital or civil partner status, caring responsibilities, disability, gender identity, age, social class, sexual orientation, religion, and other protected status as required by applicable law.